100 Best Resources For Kids/Teens With Kidney Failure (2023)

11 Jan 2022
Millions worldwide suffer from kidney disease, including children. Research continues for new treatments and cures.

Kidney failure is a serious condition that affects many people around the world. For kids and teens, it can be especially challenging. That's why it's important to have access to the best resources available. In this article, we'll explore 100 of the best resources for kids and teens with kidney failure. From support groups to educational websites, we've got you covered.

Support Groups

Support groups can be a great way for kids and teens with kidney failure to connect with others who are going through similar experiences. Here are some of the best support groups available:

  • National Kidney Foundation - The National Kidney Foundation offers a variety of resources for kids and teens with kidney failure, including support groups, educational materials, and more.
  • Kidney School - Kidney School is an online resource that provides education and support for people with kidney disease.
  • Children's Organ Transplant Association - The Children's Organ Transplant Association provides support and financial assistance to families of children who need organ transplants.
  • NephCure Kidney International - NephCure Kidney International offers a variety of support programs for people with kidney disease, including online support groups and a peer mentoring program.
  • PKD Foundation - The PKD Foundation provides support and resources for people with polycystic kidney disease (PKD), including support groups, educational materials, and research funding.
  • Renal Support Network - The Renal Support Network provides support and resources for people with kidney disease, including a peer support program and educational materials.
  • Kidney Community Emergency Response - The Kidney Community Emergency Response program provides information and resources to help people with kidney disease prepare for emergencies.
  • Life Options - Life Options is an online education program that provides information about living well with kidney disease, including resources for patients and caregivers.
  • American Kidney Fund - The American Kidney Fund offers a variety of resources for people with kidney disease, including support groups and financial assistance programs.
  • Kidney Cancer Association - The Kidney Cancer Association provides support and resources for people with kidney cancer, including educational materials and a patient navigator program.
  • International Society of Nephrology - The International Society of Nephrology is a global organization that provides resources and support for kidney health professionals and patients alike.

Educational Resources

It's important for kids and teens with kidney failure to stay informed about their condition. Here are some of the best educational resources available:

  • American Kidney Fund - The American Kidney Fund provides educational resources and support for people with kidney disease.
  • National Institute of Diabetes and Digestive and Kidney Diseases - The National Institute of Diabetes and Digestive and Kidney Diseases provides information and resources related to kidney disease.
  • Kidney Health Australia - Kidney Health Australia provides educational resources and support for people with kidney disease in Australia.
  • National Kidney Foundation - The National Kidney Foundation offers a variety of educational resources on kidney disease, including online courses, workshops, and webinars.
  • Renal Support Network - The Renal Support Network provides educational resources and support for people with kidney disease, including a patient education magazine and a peer support program.
  • Kidney School - Kidney School is an online education program that provides information about kidney disease, treatment options, and coping strategies.
  • International Society of Nephrology - The International Society of Nephrology provides education and training opportunities for kidney health professionals around the world.
  • UK Renal Registry - The UK Renal Registry collects data on kidney disease in the United Kingdom and uses it to inform research, policy, and clinical practice.
  • European Renal Association - European Dialysis and Transplant Association - The European Renal Association - European Dialysis and Transplant Association provides education and training opportunities for kidney health professionals in Europe.
  • National Kidney and Urologic Diseases Information Clearinghouse - The National Kidney and Urologic Diseases Information Clearinghouse provides information on kidney disease and other urologic conditions.
  • Kidney Research UK - Kidney Research UK funds research into kidney disease, and provides information and support to patients and their families.
  • European Kidney Patients' Federation - The European Kidney Patients' Federation represents the interests of kidney patients in Europe, and provides educational resources and support.

Financial Assistance

Kidney failure can be expensive to treat. Here are some resources that can help with the financial burden:

  • National Foundation for Transplants - The National Foundation for Transplants provides financial assistance to people who need organ transplants.
  • American Kidney Fund - The American Kidney Fund offers financial assistance to people with kidney disease who need help paying for treatment and medications.
  • Chronic Disease Fund - The Chronic Disease Fund provides financial assistance to people with chronic diseases, including kidney disease.
  • Patient Access Network Foundation - The Patient Access Network Foundation provides financial assistance for out-of-pocket healthcare expenses, including those related to kidney disease.
  • HealthWell Foundation - The HealthWell Foundation provides financial assistance to underinsured individuals who have chronic or life-altering conditions, including kidney disease.
  • NeedyMeds - NeedyMeds is a non-profit organization that provides information about programs that offer assistance with the cost of medicine and healthcare expenses.
  • National Organization for Rare Disorders - The National Organization for Rare Disorders provides information and resources for patients with rare diseases, including some types of kidney disease.
  • Partnership for Prescription Assistance - The Partnership for Prescription Assistance helps uninsured and underinsured individuals access prescription medications, including those needed for kidney disease.
  • RxAssist - RxAssist is a database of pharmaceutical company programs that provide free or low-cost medications to people who can't afford them.
  • National Kidney Foundation - The National Kidney Foundation provides resources and support for individuals with kidney disease, including information on financial assistance programs.
  • Social Security Administration - The Social Security Administration provides disability benefits for individuals with kidney failure who are unable to work.
  • Medicare - Medicare is a federal health insurance program that covers certain medical expenses for individuals with kidney failure who require dialysis or a kidney transplant.

Medical Treatment

Here are some of the best medical resources available for kids and teens with kidney failure:

  • Mayo Clinic - The Mayo Clinic is a world-renowned medical center that provides treatment for kidney disease and other conditions.
  • Cleveland Clinic - The Cleveland Clinic is another top medical center that provides treatment for kidney disease.
  • Johns Hopkins Medicine - Johns Hopkins Medicine is a leading medical institution that provides treatment for kidney disease and other conditions.
  • Stanford Health Care - Stanford Health Care provides comprehensive care for patients with kidney disease, including kidney transplants.
  • Massachusetts General Hospital - Massachusetts General Hospital offers a wide range of services for patients with kidney disease, including dialysis and transplantation.
  • University of California, San Francisco Medical Center - The University of California, San Francisco Medical Center offers specialized care for patients with kidney disease, including transplant evaluation and living donor kidney transplant.
  • Children's Hospital of Philadelphia - The Children's Hospital of Philadelphia has a Pediatric Kidney Transplant Program that provides specialized care to children with kidney failure.
  • Seattle Children's Hospital - Seattle Children's Hospital has a Pediatric Nephrology Program that provides comprehensive care to children with kidney disease.
  • Ann & Robert H. Lurie Children's Hospital of Chicago - The Ann & Robert H. Lurie Children's Hospital of Chicago has a Pediatric Kidney Disease and Nephrology Program that provides specialized care to children with kidney disease.
  • Nationwide Children's Hospital - The Nationwide Children's Hospital has a Division of Pediatric Nephrology that offers comprehensive care for children with kidney disease.
  • Lucile Packard Children's Hospital Stanford - The Lucile Packard Children's Hospital Stanford has a Pediatric Kidney Disease Program that provides specialized care for children with kidney disease.
  • Children's Hospital Los Angeles - The Children's Hospital Los Angeles has a Pediatric Nephrology and Kidney Disease Program that offers comprehensive care for children with kidney disease.

People also read: Best Resources to Help Kids and Teens Manage Anxiety

Research

Research is essential for finding new treatments and cures for kidney disease. Here are some of the best resources for kidney disease research:

  • Kidney Health Research Collaborative - The Kidney Health Research Collaborative is a network of researchers and healthcare professionals focused on improving kidney health outcomes.
  • International Society of Nephrology's Commission for Global Advancement of Nephrology - The International Society of Nephrology's Commission for Global Advancement of Nephrology works to improve kidney health worldwide through research, education, and advocacy.
  • European Kidney Patients' Federation - The European Kidney Patients' Federation represents the interests of kidney patients in Europe and advocates for improved treatment and care.
  • Kidney Research Institute - The Kidney Research Institute is a collaboration between the University of Washington and Northwest Kidney Centers that conducts research into kidney disease and translates discoveries into new treatments.
  • American Society of Transplantation - The American Society of Transplantation supports research into kidney transplantation as a treatment for kidney disease.
  • International Society of Renal Nutrition and Metabolism - The International Society of Renal Nutrition and Metabolism promotes research and education in the field of renal nutrition to improve outcomes for patients with kidney disease.
  • National Kidney Foundation of South Africa - The National Kidney Foundation of South Africa aims to improve awareness, prevention, and treatment of kidney disease in South Africa.
  • Kidney Foundation of Canada - The Kidney Foundation of Canada is a national non-profit organization dedicated to kidney health and disease prevention.
  • National Kidney Foundation - The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention, and treatment of kidney disease.
  • International Federation of Kidney Foundations - The International Federation of Kidney Foundations is a global organization that supports kidney health advocacy, research, and patient care initiatives.

Resources for Pediatric Kidney Disease

If you are interested in learning more about pediatric kidney disease, here are some resources that provide information, support, and advocacy:

Conclusion

There are many resources available for kids and teens with kidney failure. From support groups to educational resources to medical treatment, these resources can provide valuable help and support to those who need it most. If you or someone you know is struggling with kidney failure, be sure to explore these resources and find the help you need.

Sources

Recent Articles

Effective Techniques for Managing Diabetes in Children

July 12, 2024

Empower your child's future with effective techniques for managing diabetes in children.

Community Support for Children with Diabetes

July 12, 2024

Explore community support for diabetic children, the role of health clubs, and access to care essentials.

Top Pediatric Diabetes Management Programs

July 12, 2024

Discover top pediatric diabetes management programs for comprehensive child care and smoother transitions to adulthood.

Effective Home Treatments for Childhood Diabetes

July 12, 2024

Discover effective home treatments for childhood diabetes, from nutritional support to emotional care.

Essential Home Care for Children with Diabetes

July 12, 2024

Gain confidence in home care for children with diabetes with our empowering guide for parents.

Navigating Pediatric Cardiac Care at Home

July 10, 2024

Empower your pediatric cardiac care at home with our guide. Navigate emergencies and equipment with ease.

Essential Steps in Heart Condition Rehabilitation for Kids

July 10, 2024

Empower your child's heart health journey with our guide on heart condition rehabilitation for kids.

The Pediatric Out-of-Hospital Chain of Survival Steps

July 10, 2024

Master pediatric out-of-hospital chain of survival steps and empower your child's cardiac care at home.

Cardiovascular Emergencies in Pediatric Patients

July 10, 2024

Master managing cardiovascular emergencies in pediatric patients with expert home cardiac care tips.

Home-Based Heart Health Programs for Children

July 10, 2024

Discover the transformative power of home-based heart health programs for children. Better care at home!

Effective Home Treatments for Childhood Asthma

July 8, 2024

Explore effective home treatments for childhood asthma, from natural therapies to allergy control.

Best Practices for Children's Asthma Management at Home

July 8, 2024

Master children's asthma management at home with strategies on triggers, school challenges, and emergencies.

Pediatric Asthma Care Programs That Make a Difference

July 8, 2024

Discover effective pediatric asthma care programs, from diagnosis to treatment, for your child's success.

Community Support for Kids Battling Asthma

July 8, 2024

Discover community support for kids with asthma in NY—enhancing care, school programs, and resources.

Expert Advice for Managing Children's Asthma With Home Care

July 8, 2024

Gain expert insights on managing asthma in children with home care. Empower your family today!

Respite Care for Children with Special Needs

July 8, 2024

Explore respite care for children with special needs, from access to benefits, offering a lifeline for caregivers.

Is There a Cure for Sickle Cell Anemia?

July 8, 2024

Explore advancements towards curing sickle cell anemia, from gene therapy to FDA-approved treatments.

Infant Chronic Lung Disease: Breaking Down the Risks

July 8, 2024

Discover the complications of infant chronic lung disease, its risk factors, and strategies for management.

Impulse Control Disorders in Children

July 8, 2024

Conquer impulse control disorders in children with effective strategies and professional help. Get the support your child needs now!

Impulse Control Disorders and Substance Abuse: Exploring the Relationship

July 8, 2024

Unveiling the link between impulse control disorders and substance abuse. Discover the hidden dangers and find support for parents.

How to Treat High Blood Pressure in Teenager

July 8, 2024

Learn effective strategies to manage high blood pressure in teenagers, promoting healthier lifestyles and better long-term health.

How to Treat High Blood Pressure in Children?

July 8, 2024

Master strategies to treat high blood pressure in children through balanced diet, regular exercise, and medical interventions.

How to Teach a Child with Intellectual Disability to Read

July 8, 2024

Explore strategies on how to teach a child with intellectual disability to read. Empower minds today!

How To Support Teens During Major Life Transitions

July 8, 2024

Learn how to support teens during major life transitions with effective tools and strategies, promoting resilience and positive growth.

How To Support A Teen With Social Anxiety

July 8, 2024

Learn how to support a teen with social anxiety, from treatment options to creating supportive environments.

How To Support A Teen With Learning Disabilities

July 8, 2024

Discover how to support a teen with learning disabilities: from early intervention to empowering tools.

How to Support a Teen with ADHD: A Guide

July 8, 2024

Learn how to support a teen with ADHD through academic strategies, fostering independence, and promoting a healthy lifestyle.

How to Obtain Respite Care For Your Child's Wellbeing

July 8, 2024

Learn how to get respite care for your child, ensuring their wellbeing and giving you peace of mind through reliable care services.

How To Help Teens Manage Academic Pressure

July 8, 2024

Empower teens to manage academic pressure with effective strategies for stress reduction and self-care.

How To Help Teens Develop Healthy Relationships

July 8, 2024

Learn how to help teens develop healthy relationships, from nurturing friendships to handling digital influences.

How To Help Teens Develop Healthy Coping Mechanisms

July 8, 2024

Empower teens with healthy coping mechanisms. Harness their inner strength and conquer stress wisely with effective strategies and support.

How To Help Teens Develop A Healthy Self-esteem

July 8, 2024

Learn how to help teens build a healthy self-esteem. Nurture strength and resilience for lifelong confidence.

How To Handle Substance Abuse In Teens

July 8, 2024

Learn how to handle substance abuse in teens: from recognizing signs to exploring effective interventions.

How to Get Respite Care for My Child?

July 8, 2024

Learn how to get respite care for your child, explore financial aid options, and locate trusted services to support your family.

How to Get Health Insurance for Your Child with Autism?

July 8, 2024

Navigate steps to secure health insurance for your child with autism, ensuring comprehensive coverage and effective care plans.

How To Foster Positive Body Image In Adolescents

July 8, 2024

Explore how to foster positive body image in adolescents, from mental well-being to social influences.

How to Create a Safe Space for Teens to Express Their Emotions

July 8, 2024

Learn how to create a safe space for teens to express emotions, using trust, dialogue, and technology.

How to Become a Respite Caregiver for ASD

July 8, 2024

Discover how to become a respite caregiver for ASD, join a rewarding field and make a real difference.

How to Become a HCBS Provider in NY

July 8, 2024

Learn how to become an HCBS provider in NY, from Medicaid enrollment to maintaining compliance and providing high-quality care.

How to Apply for Child Care in the United States

July 8, 2024

Navigate how to apply for child care in the US, from financial aid to state programs, with our guide.

How To Address Self-harm Behaviors In Teens

July 8, 2024

Learn how to address self-harm behaviors in teens - from recognizing signs to effective intervention strategies.

How To Address Obsessive-Compulsive Disorder (OCD) In Teens?

July 8, 2024

Navigate 'how to address OCD in teens' - understanding symptoms, treatments, and the power of empathy.

How To Address Anger Issues In Adolescents

July 8, 2024

Learn how to address anger issues in adolescents with effective techniques and professional interventions.

How Sickle Cell Anemia is Inherited in Families?

July 8, 2024

Decode how sickle cell anemia is inherited and learn about risk assessment, testing, and counseling.

How Respite Can Help You and Your Child: Your Lifeline in Parenting

July 8, 2024

Discover how respite can help you and your child with disabilities – a lifeline for parents in New York.

How Rare is Childhood Dementia?

July 8, 2024

Unveiling the truth: Is childhood dementia rare? Explore the prevalence, impact, & advances in research for families facing this challenge.

How Much Time Should Parents Spend with Their Child?

July 8, 2024

Navigate the question of how much time parents should spend with their child, with a focus on autism.

How Much Is Child Support In NYC?

July 8, 2024

Get insights on 'how much is child support in NYC?' Explore factors, additional costs, and legal repercussions.

How Much Is Child Support For Two Kids In NY?

July 8, 2024

Discover how much is child support for 2 kids in NY? Unravel the factors, court's role, and services.

How Much Is Child Support For Four Kids In NYS?

July 8, 2024

Unveil the truth about how much child support is required for four kids in NYS. Explore the factors, laws, and guidelines involved.

How Much Does Health Insurance for a Child with Autism Cost?

July 8, 2024

Navigate 'how much is health insurance for a child' with autism. Uncover costs, subsidies, and more.

How Much Do Physical Therapists Actually Make?

July 8, 2024

Unravel "how much do physical therapists make" with our comprehensive guide on salaries and factors.

How Much Do Daycare Workers Get Paid in New York?

July 8, 2024

Discover how much daycare workers get paid in New York, and uncover the factors influencing their wages and overall compensation.

How Much Child Support Do I Need For One Child In NY?

July 8, 2024

Demystify how much child support is needed for one child in NY with our comprehensive guide, providing clarity and essential information.

How Many Weeks of Free Respite Care Are You Allowed?

July 8, 2024

Unravel how many weeks of free respite care are you allowed. Learn about options, costs, and coverage.

How Many Long Term Care Facilities are in the US?

July 8, 2024

Get the lowdown on how many long-term care facilities in the US, their impact, and trends shaping them.

How Many Home Health Aides Are There in New York - A Closer Look

July 8, 2024

Discover the number of home health aides in New York and how they support families with disabled children.

How Many Home Care Agencies Operate in New York State?

July 8, 2024

Discover how many home care agencies operate in New York State. Find the support your autistic child deserves.

How Long Does Group Therapy Last

July 8, 2024

Dive into the ins and outs of group therapy and discover how long group therapy typically lasts, ensuring informed participation.

How Long Can A Child Have Diabetes Without Knowing

July 8, 2024

Unmask the silent threat by learning about diagnosing diabetes in children, understanding symptoms, and effective management strategies.

How Home and Community Based Services Enhance Lives

July 8, 2024

Explore how home and community based services are transforming care, enhancing quality of life, and shaping the future.

How DSS in NYS Supports Children with Disabilities

July 8, 2024

Explore 'what is DSS in NYS?' and how it supports children with disabilities through transformative services.

How Does Cardiovascular Disease Affects Childhood?

July 8, 2024

Discover how cardiovascular disease impacts childhood, affecting physical health, emotional wellbeing, and social interactions.

How Do You Deal With Intellectual Disability? The Power of Advocacy

July 8, 2024

Discover the power of advocacy for intellectual disability and how it creates opportunities and promotes equality.

How Do You Deal With a Mentally Unstable Child

July 8, 2024

Gain insights on dealing with a mentally unstable child, from recognizing signs to seeking professional help and effective support strategies.

How Do I Know if My Child Has Intellectual Disability

July 8, 2024

Discover how to recognize if your child has an intellectual disability and the support options available.

How Crisis Affects Middle Childhood Development

July 8, 2024

Uncover how crisis affects middle childhood development and learn strategies to provide robust support.

How Conflict and Crisis Impact Childhood Development

July 8, 2024

Explore how conflict and crisis affect childhood, their impacts, and multilevel support for healing.

How Common is Pediatric Hypertension?

July 8, 2024

Discover how common pediatric hypertension is and gain insights on its risk factors, symptoms, and management.

How Child Care Vouchers Help in NY

July 8, 2024

Navigate child care vouchers in NY - from eligibility to application, we've got your childcare costs covered.

How CFASS Can Help Your Child's Journey

July 8, 2024

Discover how CFASS empowers children with disabilities. Support, guidance, and resources for your child's journey!

Home-Based Waiver Programs for Kids

July 8, 2024

Discover home-based waiver programs for kids, simplifying care and assistance for your special needs child.

Home-based Therapy for Intermittent Explosive Disorder

July 8, 2024

Discover effective home-based therapy for intermittent explosive disorder, enhancing peace and quality of life.

Home-Based Strategies for Explosive Disorder Treatment

July 8, 2024

Explore effective home-based explosive disorder treatment strategies to transform your child's life.

Home-Based Strategies for ADHD Treatment

July 8, 2024

Discover effective home-based ADHD treatment strategies to empower parents and improve children's lives.

Home-Based Respite Services for Kids

July 8, 2024

Explore home-based respite services for kids in NY: a beacon of hope for caregivers of special needs children.

Home-based Mental Health Support For Kids

July 8, 2024

Explore home-based mental health support for kids in NY: resources, professional help, and self-care tips.

Home-based Anxiety Management For Kids

July 8, 2024

Create a calming home environment with strategies for managing anxiety in kids, from structured routines to relaxation techniques.

Home Health Care Services

July 8, 2024

Explore home health care services and their benefits, financing options, and their future, all in one guide.

Home Health Aide Hourly Earnings in NY

July 8, 2024

Discover how much home health aides make an hour in NY, their responsibilities, and the advanced tasks they handle to provide comprehensive care.

High Functioning Autism Symptoms Uncovered

July 8, 2024

Discover and understand high-functioning autism symptoms, their unique strengths, and the support needed for a fulfilling life.

High Blood Pressure in Teens: The Silent Threat

July 8, 2024

Unveiling the silent threat: High blood pressure in teens. Learn about risks, consequences, and effective management strategies.

Heart Disease in Children: Identifying Symptoms

July 8, 2024

Identifying heart disease symptoms in children: Stay vigilant and protect their little hearts with early detection.

Group Therapy Topics For Youth

July 8, 2024

Discover engaging group therapy topics for youth, fostering growth, resilience, and shared experiences through guided discussions.

HCBS Services Brochure: A Guide to Connecting Families with HCBS

July 8, 2024

Explore the HCBS services brochure: a guide to enhancing community integration, improving health outcomes, and accessing vital support.

HCBS Services List With Eligibility & Benefits

July 8, 2024

Master the HCBS services list! Learn eligibility, benefits, and how these services enhance quality of life.

Helping Children with ODD Thrive

July 8, 2024

Learn ways to manage ODD in children, from effective parenting techniques to school-based support.

Finding Autism and Mental Health Support for Kids in New York

July 8, 2024

Empower your parenting with our guide on autism and mental health support for kids in New York.

How to Become a HCBS Provider in New York

July 8, 2024

Unlock opportunities to become a HCBS provider in NY. Discover the requirements, application process & benefits for individuals with autism.

Intellectual Disability in Child Development

July 8, 2024

Explore intellectual disability in child development: its causes, impacts, and strategies for caregiver support.

Integrated Counseling for Enhanced Autism Treatment

July 8, 2024

Explore integrated counseling's potential in enhancing autism treatment, from benefits to future prospects.

Innovative Teletherapy Games for Children with Autism

July 8, 2024

Explore empowering teletherapy games for children with autism. Discover online resources and therapy benefits.

In-Home Support Services for Autism

July 8, 2024

Explore the impact of in-home support services for autism, from quality assurance to financial aspects.

How to Start a Private Home Care Business in New York: A Guide

July 8, 2024

Unlock NY's best-kept secret: Kickstart your private home care business and thrive in the booming healthcare industry!

How to Help a Child Overcome School Refusal

July 8, 2024

Discover how to help a child overcome school refusal with effective treatments and supportive strategies.

Intellectual Disability Resources [For Teachers]

July 7, 2024

Discover innovative teaching strategies for intellectual disabilities. Foster inclusive education and empower students to break barriers.

Intellectual Disability Symptoms

July 7, 2024

Unmasking intellectual disability symptoms: Understand the signs, causes, and management strategies.

Intellectual Disability Types: From Down Syndrome to Fragile X

July 7, 2024

Discover the diverse types of intellectual disability, from Down Syndrome to Fragile X. Understand symptoms, support, and interventions.

Is ADHD Considered An Intellectual Disability?

July 7, 2024

Discover the truth about ADHD and intellectual functioning. Is it an intellectual disability? Find out.

Is Autism Considered a Part of Intellectual Disability?

July 7, 2024

Explore if autism is considered an intellectual disability, challenging assumptions and shedding light on facts.