Respite Care for Parents of Children with ADHD

11 Jan 2022
Discover respite care for child with ADHD: benefits, financial aid, and how it reduces hospitalization.

Respite Care for Children with Disabilities

Respite care plays a crucial role in the lives of families caring for children with disabilities, including those with ADHD. It provides a temporary relief for caregivers, allowing them to rest and recharge, while ensuring that their child receives care in a safe and supportive environment.

Importance of Respite Care

Respite care is an arrangement whereby someone with a disability and the person who cares for them are given a short-term break from each other. This service is beneficial for both the carer and the person with the disability. It's especially beneficial for parents caring for children with ADHD, as it provides immediate relief to exhausted, overwhelmed parents by giving them a break while ensuring quality 1:1 time for the child with a trusted adult. The intent is to keep intensely needy, behaviorally challenging children living at home and avoid psychiatric hospitalizations.

Respite care plays a crucial role in maintaining the child's ability to live at home. A real-life example underscores this, where a mother faced the decision of transferring her son with FASD to a residential school due to his challenging behavior. The availability of respite care prevented the need for such a drastic step, highlighting the importance of these services in supporting families.

Benefits of Respite Care for Caregivers

Respite care can be a valuable break for caregivers of children with special health care needs, allowing them to have some time for themselves or one-on-one time with others. This break can relieve stress, restore energy, and promote a more balanced life. In addition, it can provide opportunities for caregivers to engage in activities that they enjoy and maintain their own identity outside of their caregiving role.

Moreover, respite is the only service that directly benefits the whole family and provides immediate relief to exhausted, overwhelmed parents caring for children with ADHD or special needs. This differs from therapeutic services, which may not alleviate caregiver stress in the short-term.

In conclusion, respite care is not just a luxury but a necessity for parents of children with ADHD. It supports the child's ability to live at home, prevents caregiver burnout, and ultimately promotes a healthier and more balanced family life. It's therefore essential for families to explore the availability and funding options for respite care services in their area.

Financial Assistance for Respite Care

Securing financial assistance for respite care can be a significant hurdle for families with children who have special needs. Various programs and funding avenues can help offset the costs associated with respite care for a child with ADHD.

State-Funded Respite Programs

The state of Ontario funds two types of respite for families with children with disabilities, including in-home and out-of-home respite services. These services provide relief from the day-to-day care of the child. Families of children who are medically fragile and/or technology dependent can receive up to $4,130 per child for the 2023–24 fiscal year to spend on respite care [4].

Eligible families can get back the cost of covered respite services or supports through the Enhanced Respite for Medically Fragile and/or Technology Dependent Children program, with services covered similar to those under the Special Services at Home program. Likewise, families with children with physical and/or developmental disabilities may qualify for funding through the Special Services at Home Program to buy respite or supports that aid in their child's growth and development.

Medicaid Coverage for Respite Care

Government medical assistance programs, such as Medicaid, can help families of children with special needs, like those with ADHD, cover expensive care costs including therapy, medications, equipment, and in-home nursing. Children may qualify for low or no-cost services based on family caregiver income and disability status, providing essential support in managing care demands.

Assistance Programs for Families in Need

Low to moderate-income families can apply for financial support through the Assistance for Children with Severe Disabilities Program to cover the extraordinary costs of caring for a child with a severe disability.

Financial assistance programs such as Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) are available to ease the economic burden faced by families of special needs children, including those with ADHD. These programs offer monthly cash benefits, medical services, and other support based on specific eligibility criteria, but navigating the application process may be challenging [5].

Furthermore, Temporary Assistance for Needy Families (TANF) can provide critical respite and short-term financial help to struggling families caring for children with special needs, including those with ADHD [5].

Lastly, disease-specific nonprofits, like Autism Speaks, offer grants for respite care, assistive technologies, and summer camp scholarships to help families caring for children with special needs, such as those with ADHD. These grants provide valuable support to families and alleviate some of the financial burdens associated with specialized care and assistance.

Behavior Therapy for ADHD

An important aspect of managing ADHD in children is behavior therapy. This form of treatment can significantly improve a child’s behavior, self-control, and self-esteem, especially when delivered by parents.

Effectiveness of Behavior Therapy

According to the CDC, behavior therapy is an effective treatment for attention-deficit/hyperactivity disorder (ADHD) in children. It is most beneficial for young children when delivered by parents. In fact, healthcare providers are encouraged to refer parents of children younger than 12 years old for training in behavior therapy. Furthermore, for children younger than 6 years old, parent training in behavior management should be tried before prescribing ADHD medication. Learning and practicing behavior therapy requires time and effort, but it has lasting benefits for the child and the family.

Parent Training in Behavior Management

Parent training in behavior management for ADHD typically involves parents attending 8-16 sessions with a therapist. During these sessions, parents learn strategies to help their child manage their behavior. These sessions may involve groups or individual families. After therapy ends, families continue to experience improved behavior and reduced stress.

It's important to note that only therapy that focuses on training parents is recommended for young children with ADHD. This is because young children are not mature enough to change their own behavior without their parents’ help. Some therapists may use play therapy or talk therapy to treat young children with ADHD, but these methods have not been proven to improve symptoms in young children with ADHD.

These findings emphasize the importance of parent involvement in behavior therapy for managing ADHD in children. Parents learn skills and strategies to help their child with ADHD succeed at school, at home, and in relationships. This, in turn, makes parent training in behavior therapy a crucial part of respite care for children with ADHD.

One of the benefits of respite care services is that they decrease the likelihood that a child with ADHD will need hospitalization. A study found that for every $1,000 states spent on respite services in the previous 60 days, there was an 8 percent drop in the odds of hospitalization for individuals with ADHD enrolled in Medicaid.

However, the lack of association between therapeutic services (such as speech, occupational, behavioral therapies) and hospitalization raises concerns about the effectiveness of these services in preventing hospitalizations for individuals with ADHD, as indicated by a study by researchers at the University of Pennsylvania [2].

Accessing Respite Care Services

Respite care is crucial for parents with children with ADHD, providing a short-term break and offering beneficial support for both the carer and the child. However, accessing these services requires understanding the types of respite care, finding skilled caregivers, and identifying funding options.

Types of Respite Care

There are several types of respite care, including in-home care, out-of-home care, and parent "co-ops" where families take turns watching each other's kids. These diverse options allow families to choose a type of care that best suits their needs and lifestyles. Moreover, support groups for families with similar conditions can also be a good resource for finding respite care options [3].

Finding Skilled Caregivers

Locating a skilled and trustworthy caregiver for a child with ADHD can be a daunting task. However, organizations such as the National Respite Network and Resource Center, ARCH Respite Locator, and the American Association on Health and Disability can be valuable sources of experienced caregivers. These organizations provide help and information and may have local chapters.

It's essential to conduct background and reference checks when interviewing potential caregivers. They should have the necessary skills to handle all of the child's needs, and it's recommended to observe how the caregiver interacts with the child in person to ensure comfort and compatibility [3].

Funding Options for Respite Care

There are several funding programs available to help with the costs of respite care for children with special health care needs. These programs include Medicaid, state respite coalitions, local resources, and grants from organizations like the Easter Seals. Social workers and local Family Voices chapters can provide guidance on eligibility for respite services [3].

Accessing respite care services for a child with ADHD involves multiple steps, but the stress relief and support provided make the process worthwhile. Through understanding the types of care, locating skilled caregivers, and identifying potential funding sources, parents can ensure their child receives the care they need while also allowing themselves a much-needed break.

State Variations in Respite Care Availability

The availability of respite care services for children with ADHD can significantly vary from state to state. This discrepancy in services can make it challenging for families to find the right kind of support for their child with ADHD.

State-Specific Respite Services

In the U.S., the availability of respite and other in-home services for kids with ADHD and other mental health conditions varies from state to state. Furthermore, guidelines for qualifications also differ based on factors like financial situation, diagnosis, and severity of impairment.

For instance, some states like Iowa provide respite services through Children's Mental Health Waiver funds. These funds cover various services like in-home therapy, home and community skill building, and adaptive equipment for children with ADHD who require constant supervision to stay safe.

However, the level of in-home support available to families managing children with special needs can differ widely across states. For example, Iowa and Minnesota offer different levels of in-home help per week, demonstrating the disparities in services across states [2].

Challenges in Accessing Respite Services

Despite the recognized benefits of respite care for children with ADHD, many families face challenges in accessing these services due to limitations in Medicaid coverage. The current coverage restrictions can make it difficult for families in need to receive the necessary support, often resulting in increased stress and caregiver burnout.

Policy-setters and lawmakers are encouraged to reconsider offering respite care to Medicaid recipients. This recommendation is based on positive research results showing its effectiveness in preventing hospitalization [2].

In summary, while respite care can be a valuable resource for parents of children with ADHD, the availability of these services can vary widely from state to state, creating significant challenges for families in need. It's critical for families to understand their state's specific services and eligibility requirements to effectively navigate the system and access the support they need.

Impact of Respite Care on Hospitalization

Respite care, in its role as a support system for families, has shown a significant impact on hospitalization rates of children with ADHD and other special needs. It also compares favorably with therapeutic services in terms of immediate benefits for the entire family.

Decreasing Hospitalization Rates

Studies reveal that respite services can decrease the likelihood of hospitalization for children with ADHD and other special needs. A research study, involving over 28,000 kids and young adults (ages 5-21) with autism enrolled in Medicaid in 2004, found that for every $1,000 states spent on respite services in the previous 60 days, there was an 8 percent decrease in the odds of hospitalization.

This finding underscores the importance of states investing in respite services to support families and reduce the need for hospitalization. It also highlights the crucial role respite care plays in creating supportive environments for children with special needs and their families.

Comparison with Therapeutic Services

When compared to therapeutic services such as speech, occupational, and behavioral therapies, respite care stands out in terms of its immediate benefits for the family. While therapeutic services play an important role in the child's development and well-being, they may not alleviate caregiver stress in the short-term. On the other hand, respite care directly benefits the whole family and provides immediate relief to exhausted, overwhelmed caregivers [2].

It's also worth noting that a study by researchers at the University of Pennsylvania indicated a lack of association between therapeutic services and decreased hospitalization rates. This raises concerns about the effectiveness of these services in preventing hospitalizations for individuals with autism.

In the context of choosing between respite care and therapeutic services, it's not a matter of one being better than the other. Rather, they serve different purposes and can complement each other in a comprehensive care plan for a child with ADHD or other special needs. It's crucial to consider the unique needs and circumstances of each family when deciding on the most suitable services.

References

[1]: https://www.healthyplace.com/adhd/articles/respite-care-for-people-with-adhd-in-uk

[2]: https://www.additudemag.com/reasons-for-respite/

[3]: https://kidshealth.org/en/parents/respite-care.html

[4]: http://www.ontario.ca/page/family-support-and-respite-children-and-youth-special-needs

[5]: https://www.joingivers.com/learn/special-needs-children-financial-support

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